Developmental care pathway for hospitalised infants with CHD: On behalf of the Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative

Amy J. Lisanti, Department of Family and Community Health, University of Pennsylvania School of Nursing, Philadelphia, PA, USA.
Dorothy J. Vittner, Egan School of Nursing and Health Studies, Fairfield University Fairfield, CT, USA, Connecticut Children's, Hartford, CT, USA.
Jennifer Peterson, The Johns Hopkins University School of Nursing, Baltimore, MD, USA.
Andrew H. Van Bergen, Advocate Aurora HealthFollow
Thomas A. Miller, Department of Pediatrics, Maine Medical Center, Portland, ME, USA.
Erin E. Gordon, Inpatient Cardiac Neurodevelopment Program, Division of Critical Care Medicine, University of Texas Southwestern Medical Center, Dallas, TX, USA.
Karli A. Negrin, Department of Therapeutic and Rehabilitative Services, Nemours Children Hospital, Wilmington, DE, USA.
Hema Desai, Rehabilitation Services, CHOC Children's Hospital, Orange, CA, USA.Follow
Suzie Willette, Department of Speech-Language Pathology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Melissa B. Jones, Cardiac Critical Care, Children's National Hospital, Washington, DC, USA.
Sherrill D. Caprarola, Heart Institute, Children's Hospital Colorado, University of Colorado, Aurora, CO, USA.
Anna J. Jones, Office of Advanced Practice Providers, UT Southwestern Medical Center, Dallas, TX, USA, Heart Center, Children's Health, Dallas, TX, USA.
Stephanie M. Helman, Department of Acute and Tertiary Care, University of Pittsburgh School of Nursing, Pittsburgh, PA, USA.
Jodi Smith, Parent Representative, The Mended Hearts, Inc., Program Director, Richmond, VA, USA.
Corinne M. Anton, Department of Psychology and Psychiatry, University of Texas Southwestern Medical Center, Dallas, TX, USA.
Laurel M. Bear, Department of Pediatrics, Medical College of Wisconsin, Children's Wisconsin, Milwaukee, WI, USA.
Lauren Malik, Department of Acute Care Therapy Services, Primary Children's Hospital, Salt Lake City, UT, USA.
Sarah K. Russell, Department of Therapeutic and Rehabilitative Services, Nemours Children Hospital, Wilmington, DE, USA.
Dana J. Mieczkowski, Department of Therapeutic and Rehabilitative Services, Nemours Children Hospital, Wilmington, DE, USA.
Bridy O. Hamilton, Department of Therapeutic and Rehabilitative Services, Nemours Children Hospital, Wilmington, DE, USA.
Meghan McCoy, Pediatric and Congenital Heart Center, Duke University Hospital, Durham, NC, USA.
Yvette Feldman, Nursing & Patient Care Center of Excellence, St. Luke's Health System, Boise, ID, USA.
Michelle Steltzer, Single Ventricle Center of Excellence, Ann & Robert H. Lurie Children's Hospital, Chicago, IL, USA.
Melanie L. Savoca, Department of Clinical Nutrition, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Diane L. Spatz, Department of Family & Community Health, University of Pennsylvania School of Nursing, The Center for Pediatric Nursing Research and Evidence Based Practice, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Samantha C. Butler, Department of Psychiatry (Psychology), Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.

Affiliations

Advocate Heart Institute, Advocate Children's Hospital

Abstract

Infants and children born with CHD are at significant risk for neurodevelopmental delays and abnormalities. Individualised developmental care is widely recognised as best practice to support early neurodevelopment for medically fragile infants born premature or requiring surgical intervention after birth. However, wide variability in clinical practice is consistently demonstrated in units caring for infants with CHD. The Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative, formed a working group of experts to create an evidence-based developmental care pathway to guide clinical practice in hospital settings caring for infants with CHD. The clinical pathway, "Developmental Care Pathway for Hospitalized Infants with Congenital Heart Disease," includes recommendations for standardised developmental assessment, parent mental health screening, and the implementation of a daily developmental care bundle, which incorporates individualised assessments and interventions tailored to meet the needs of this unique infant population and their families. Hospitals caring for infants with CHD are encouraged to adopt this developmental care pathway and track metrics and outcomes using a quality improvement framework.

Type

Article

PubMed ID

36994672

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