Publication Date



childhood-onset chronic disease, congenital diseases, special health care needs, Down syndrome, cystic fibrosis, congenital heart disease, Hirschsprung disease


Some chronic diseases — such as the rare bone disease X-linked hypophosphatemia, the impetus for a study reported within Volume 7, Issue 2 of the Journal of Patient-Centered Research and Reviews — are diagnosed in childhood but become more symptomatic in adulthood. In this editorial, the challenges, pitfalls, and opportunities regarding the care of adults with childhood-onset chronic diseases are examined using Down syndrome, cystic fibrosis, congenital heart disease, and Hirschsprung disease as examples.




March 5th, 2020


April 23rd, 2020


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